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CHARGE on: Digital parenting of a child with rare genetic syndrome with the help of Facebook group
School of Arts, Culture and Communication, University of Malmö, Sweden.ORCID iD: 0000-0003-2122-951X
Responsible organisation
2018 (English)In: Digital Parenting: The Challenges for Families in the Digital Age, Yearbook 2018 / [ed] Mascheroni, Giovanna, Cristina Ponte, & Ana Jorge, Gothenburg: Nordicom, University of Gothenburg , 2018, p. 189-198Chapter in book (Other academic)
Abstract [en]

This article relies on auto-ethnography to make sense of the role a closed Facebook group can play in the life of a parent with a child who has rare genetic syndrome, CHARGE. The article will use the concept of affordances as a general framework to make sense of the activities in the Facebook group. For Norman “affordances refer to the potential actions that are possible, but these are easily discoverable only if they are perceivable: Perceived affordances”, thus the Facebook group becomes a sum of imagined possibilities. Previous research has identified the following affordances of social media: identity, flexibility, structure, narration and adaptation. These five affordances will be used to structure the discussion around the parenting experiences.

Place, publisher, year, edition, pages
Gothenburg: Nordicom, University of Gothenburg , 2018. p. 189-198
Keywords [en]
affordances, social media, auto-ethnography, parenting of a disabled child, online support community
National Category
Media and Communications
Research subject
Media; Family; Digitization
Identifiers
URN: urn:nbn:se:norden:org:diva-12031Libris ID: r1650pg7pdwv2nk25ISBN: 978-91-88855-00-8 ISBN: 978-91-88855-01-5 OAI: oai:DiVA.org:norden-12031DiVA, id: diva2:1535911
Note
Go to the full book to find a version of this chapter tagged for accessibility.Available from: 2021-03-09 Created: 2021-03-09Bibliographically approved

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