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Rygmarvsskadede patienters involvering i beslutninger om egen rehabilitering
Nordic Council of Ministers, Nordic School of Public Health NHV.
2011 (Danish)Independent thesis Advanced level (degree of Master (Two Years))Student thesisAlternative title
Patient involvement in spinal cord rehabilitation (English)
Abstract [da]

Formål: Formålet med undersøgelsen har været at få indsigt i og viden om, hvordan nytilskadekomne rygmarvsskadede patienter oplever og opfatter at deltage i tværfaglige patientkonferencer, hvor deres rehabiliteringsforløb tilrettelægges.

Metode: Undersøgelsesmetoden er kvalitativ med en fænomenografisk forskningstilnærmelse. Dataindsamlingen er foretaget ved hjælp af kvalitative semistrukturerede interview. Der er gennemført 15 interview blandt otte indlagte patienter, tre kvinder og fem mænd i alderen fra 28 til 75 år

Resultat: Analysen viste at patienterne fandt, at det var meningsfuldt at deltage i patientkonferencer om eget rehabiliteringsforløb og for de fleste en nødvendig og selvfølgelig del af rehabiliteringen. Der blev identificeret fire beskrivende hovedkategorier: Patientkonferencer oplevedes støttende i en rehabiliteringsproces; Forskellige følelser var i spil; Pårørendes deltagelse havde betydning; Mødekultur og deltageres betydning

Konklusion: Denne undersøgelse viste, at nytilskadekomne rygmarvsskadede og sorgfyldte patienter oplevede, at de var i stand til og gerne ville deltage aktivt i beslutninger i forhold til eget rehabiliteringsforløb. Tværfaglige patientkonferencer blev opfattet som et forum, hvor patienter og pårørende kunne få overblik og kontrol i en situation, hvor patienternes livssituation var kaotisk i relation til komplekse og omfattende fysiske funktionstab. Undersøgelsen har afdækket områder, som har vist sig at have haft betydning for, om patienterne oplevede disse konferencer som meningsfulde og tilfredsstillende

Abstract [en]

Aim: This study aimed to increase understanding of how patients newly injured with spinal cord lesion experience rehabilitation planning conferences with their clinicians and therapists.

Method: I used a qualitative methodology within a phenomenographic research approach. Data was collected during 15 qualitative and semi-structured interviews with eight hospitalized patients (three women and five men) ranging in age between 28 to 75 years.

Results: The data suggests that patients view participation in rehabilitation conferences as essential. Indeed, some patients deemed participation a necessary and natural part of their rehabilitation. Four main categories were identified: patient conferences support rehabilitation; emotional vulnerability; family participation matters; and atmosphere and location of conferences are critically important.

Conclusion: The results show that patients newly injured by spinal cord lesion can and want to participate in decisions about their own rehabilitation, even when they are grieving and in a state of shock. Interdisciplinary patient conferences that include relatives provide an ideal environment and help patients gain oversight and control in an often chaotic life situation resulting from complex and substantial physical disabilities. The data also revealed areas for improvement that will help ensure meaningful and satisfactory patient conferences

Place, publisher, year, edition, pages
2011. , 50 p.
Series
Master of Public Health, MPH, ISSN 1104-5701 ; MPH 2011:5
Keyword [en]
Patient Conferences, Rehabilitation, Participation, Spinal Cord Injury, Phenomenographic
Keyword [da]
patientkonferencer; rehabilitering; deltagelse; rygmarvsskade; fænomenografi
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:norden:org:diva-3136OAI: oai:DiVA.org:norden-3136DiVA: diva2:721509
Presentation
2011-05-13, Nordic School of Public Health NHV, Box 121 33, Göteborg, Sweden, 00:00 (Danish)
Supervisors
Note

ISBN 978-91-86739-14-0

Available from: 2014-06-04 Created: 2014-06-04 Last updated: 2015-01-30Bibliographically approved

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MPH 2011:5(638 kB)348 downloads
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Citation style
  • apa
  • harvard1
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  • de-DE
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  • nn-NB
  • sv-SE
  • Other locale
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Output format
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