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Support and education of immigrants with chronically ill children: Identified needs from a case study of Turkish and Kurdish families
Nordic Council of Ministers, Nordic School of Public Health NHV.
Nordic Council of Ministers, Nordic School of Public Health NHV.
Nordic Council of Ministers, Nordic School of Public Health NHV.
2008 (English)In: Health Education Journal, ISSN 0017-8969, E-ISSN 1748-8176, Vol. 67, no 1, 35-44 p.Article in journal (Refereed) Published
Abstract [en]

Objective The aim of the study was to analyse how parents of Turkish and Turkish/Kurdish children with diabetes and health care professionals perceived the education and support provided, and to assess what was required to improve the collaboration between the families and the team in order to optimize selfcare and metabolic control.

Design A case study including semi-structured interviews, participant observation and information from medical records.

Setting The study was carried out in Copenhagen, Denmark.

Method The study included 11 children aged 4—17 years of Turkish and Kurdish origin, their parents, the Turkish interpreter and the paediatric diabetes team.

Results The study identified the following factors that might contribute to improve the outcome: 1) Adjusted educational initiatives to promote a better understanding of concepts like chronic disease and selfcare, and to ensure that the content of the education is understood, implemented and maintained; 2) special support to enable parents to deal with practical and emotional problems and conflicts related to diabetes management; 3) closer contact and psychosocial support in order to promote learning and motivation for selfcare as well as promoting attendance at the clinics.

Conclusion Non-western immigrants have a considerable need for special support to help them learn to manage a chronic disease. Health education should aim at bridging the gap between differences related to culture and traditions

Place, publisher, year, edition, pages
2008. Vol. 67, no 1, 35-44 p.
Keyword [en]
Case Study, Chronically Ill Children, Education, Immigrants, Support
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:norden:org:diva-3450OAI: oai:DiVA.org:norden-3450DiVA: diva2:755691
Available from: 2014-10-15 Created: 2014-10-15 Last updated: 2014-10-21Bibliographically approved
In thesis
1. Diabetes in children and adolescents from non-western immigrant families: health education, support and collaboration
Open this publication in new window or tab >>Diabetes in children and adolescents from non-western immigrant families: health education, support and collaboration
2008 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Aims: The general aims of this thesis were 1) To explore how non-western immigrant families’ different background and factors related to immigration and acculturation may affect the outcome of education and support in paediatric diabetes management; 2) To provide knowledge on how diabetes education and support for immigrant children and their families should be given to ensure them adequate competence in disease management and the children optimum metabolic control. Methods: The thesis comprises five studies carried out 2001-2006. Study I was based on national register data on metabolic control (N=977), questionnaires to all 20 Danish paediatric diabetes centres and structured interviews with 38 immigrant families. Study II was an intervention study including the development of guidelines and adapted educational material, followed by a re-education programme for 37 families. Study III was a case study of 11 Turkish and Kurdish children/families comprising data from medical records, a participant observation and qualitative interviews with the parents, one interpreter and three diabetes team members. Study IV included qualitative interviews with Arabic parents of 12 children, living as immigrants in Denmark and in Cairo/Egypt respectively. Study V comprised data on metabolic control and qualitative interviews with 11 young adult immigrants with type 1 diabetes since childhood or adolescence.Findings: The young immigrants were very unevenly distributed between the Danish paediatric centres. Most teams had little knowledge of and no special educational offers for immigrant families, just as the use of professional interpreters was limited. The immigrant parents had clearly different pre-conditions for diabetes education as compared with ethnic Danish parents, just as most had a low level of acculturation as evaluated by their need for an interpreter. Major differences were identified between the different ethnic groups and between the individual immigrants. The immigrant children and adolescents had different pre-conditions as compared to their parents; most, however, had non-optimum metabolic control. The design of an adapted educational programme could optimise the outcome of diabetes education, but was not sufficient to provide the families with competence in diabetes management and the children/ adolescents with good metabolic control of long duration. Many parents in particular experienced difficulty combining diabetes management with their principles relating to good parenthood. In addition, they appeared to be insecure and doubtful about the competence of the Danish health care professionals.Conclusions: A different ethno-cultural background is likely to create barriers to health education, learning and collaboration. The non-homogeneity of non-western immigrant families requires educational initiatives tailored to the pre-conditions and needs of the individual family members; adapted initiatives such as peer education are suggested. Special support for immigrant children and adolescents should be considered. A close, supportive and trust-filled relationship between the families and health care professionals is needed to facilitate learning, collaboration and good metabolic contro

Place, publisher, year, edition, pages
Göteborg: Nordic School of Public Health NHV Göteborg, Sweden, 2008. 63 p.
Series
NHV Reports and Doctor of Public Health-Theses, ISSN 0283-1961 ; NHV Report 2008:1
Keyword
Non-western Immigrants; Children; Adolescents; Parents; Type 1 Diabetes; Health Education; Support; Collaboration; Adaptation; Public Health; Health Promotion
National Category
Medical and Health Sciences
Identifiers
urn:nbn:se:norden:org:diva-3469 (URN)978-91-85721-24-5 (ISBN)
Public defence
2008-01-22, 13:00 (Danish)
Opponent
Supervisors
Available from: 2014-10-21 Created: 2014-10-21 Last updated: 2014-10-21Bibliographically approved

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