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Yrkesaktive pårørende til personer med demens: hvordan kan omsorgen påvirke fungeringi arbeidslivet?
Nordic Council of Ministers, Nordic School of Public Health NHV.
2014 (Norwegian)Independent thesis Advanced level (degree of Master (Two Years))Student thesisAlternative title
Professionally active family carers for persons with dementia : How cancaregiving affect work performance? (English)
Abstract [no]

Bakgrunn: Demens er en av hovedårsakene til sykdom i eldre år. Pårørende til personer med demenser i risikofor å få omsorgsbelastninger, og en stor andel er i yrkesaktiv alder.Undersøkelser viser at pårørende kan komme i konsekvenser for arbeidsliv.

Hensikt: Studiens hensikt var å undersøke og beskrive om, og i så fall hvordan pårørendes omsorg for personer med demens kan påvirkederes fungering i arbeidslivet. Videre,å sepå sammenhengen mellom pårørendes opplevelse av påvirkning og ulike karakteristika ved omsorgssituasjonen, samt beskrive hvordan de mestrer omsorgsutfordringene i arbeidstiden.

Metode: Studien baseres på datafra spørreskjemaer fra 594 yrkesaktive pårørende som svarte på spørsmålet om omsorgsoppgavene påvirket deres fungering på arbeid. Dataene ble samlet inn i forbindelse med to tidligere norske tverrsnittsstudieri henholdsvis 2002-2004 og 2008-2009,og inkluderer både kvantitative og kvalitative data.

Resultat: 37.5 % av de pårørendemed gjennomsnittsalder på 51 år og signifikant flere kvinner,svarte at omsorgen påvirket deres fungering i arbeidslivet. Den største gruppen (69.2 %) var døtre til en forelder med demens. Bosted til personen med demens ga ingen signifikant forskjell med hensyn til om pårørende opplevde påvirkning, mens derimot å bo sammen med personen med demens gjorde det. Situasjonen resulterte blant annet i telefoner fra personen med demens, praktiske omsorgs-oppgaverogoppfølging i forhold til tjenestetilbudet i arbeidstiden, samt ulike former for fravær fra arbeid. Pårørende opplevde stress og å komme i tidsklemme. Tilfredshet med tjenestetilbudog hjelp og støtte fra familie og venner syntes å ha en positiv effekt.

Konklusjon: Studien viser at å være omsorgsgiver for en person med demens og samtidig yrkesaktiv kan ha en negativ påvirkning på fungering i arbeidslivet. Pårørende oppleveret dilemma mellomå mestre omsorgsoppgavene og samtidig opprettholde et optimalt yrkesaktivt liv

Abstract [en]

Background: Dementia is a major cause of illness in old age. Family carers for persons with dementia are at risk of experiencing burden of care. Many carers continue to work while providing care. Studies show that "time squeeze" induced by caring for an elderly family member might have negative consequences for the carers’employment.

Aim: This study aimed to examine and describe whether caring for persons with dementia affects family carers’ ability to function at work. Furthermore,the aim of the study was to examine the relationship between various characteristics of the carer’s situation and functioning at work. It also describes how they cope with obligations both as carers and employees.

Methods: The study is based on data from questionnaires completed by 594 of 614 employed family carers who responded to a question about how caring for a person with dementia affected ability to function at work. Data were collected in connection with two former Norwegian cross-sectional studies, conducted in 2002-2004 and 2008-2009.The present study includes both quantitative and qualitative data.

Results: Among all respondents 37.5% reported that caring for a family member with dementia affects their ability to function at work. Mean age was 51 years and significantly more women and daughters formed the largest group (69.2%). The residence to the person with dementia (own home or nursing home)revealed no significant difference regarding the carers impact at work, whereas living together with the family member with dementia did. Impact factors included phone calls from the person with dementia, practical caring tasks, followingup on healthcare services, and different types of absence from work.The family carers experienced stress and lack of time. Satisfaction with health care services, as well as help and support from family and friends seemed to have a positive effect.

Conclusion: This study shows that balancing caring for a person with dementiain combination with being profewssionally active may negatively affect the ability to function at work. The dilemma family carers experience between work and care giving obligations maybe difficult to manage while maintaining an optimal active working life.

Place, publisher, year, edition, pages
2014. , 47 p.
Series
Master of Public Health, MPH, ISSN 1104-5701 ; MPH 2014:23
Keyword [en]
dementia, family carers, employee, burden, stress, work performance
Keyword [no]
demens, pårørende, yrkesaktiv, omsorgsbelastning, stress
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:norden:org:diva-3585OAI: oai:DiVA.org:norden-3585DiVA: diva2:779079
Presentation
2014-10-15, Nordic School of Public Health, Box 12133, Göteborg, Sweden, 13:00 (Norwegian)
Supervisors
Note

ISBN 978-91-86739-88-1

Available from: 2015-01-19 Created: 2015-01-12 Last updated: 2015-01-19Bibliographically approved

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