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  • 1.
    Lindahl Norberg, Annika
    et al.
    Department of Women’s and Children’s Health, Childhood Cancer Research Unit, Karolinska Institutet, Stockholm, Sweden, 2 U-CARE/Psychosocial Oncology and Supportive Care, Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.
    Mellgren, Karin
    Department of Pediatrics, Institution for Clinical Sciences, University of Gothenburg, Gothenburg, Sweden,.
    Winiarski, Jacek
    Department of Clinical Science, Intervention and Technology, Astrid Lindgren Children’s Hospital, Karolinska Institutet, Karolinska University Hospital Huddinge, Stockholm, Sweden.
    Forinder, Ulla
    Nordic Council of Ministers, Nordic School of Public Health NHV. Department of Social Work, Stockholm University, Stockholm, Sweden.
    Relationship between problems related to child late effects and parent burnout after pediatric hematopoietic stem cell transplantation2014In: Pediatric Transplantation, ISSN 1397-3142, E-ISSN 1399-3046Article in journal (Refereed)
    Abstract [en]

    A few studies have indicated that parents’ reactions to achild’s serious disease may entail long-term stress for the parents.However, further knowledge of its consequences is valuable. The aim ofthe study was to investigate the occurrence of burnout in a Swedishnational sample of parents of children who had undergone HSCT andsurvived. Burnout (Shirom–Melamed Burnout Questionnaire) andestimations of the child’s health status (Lansky/Karnofsky estimationsand study-specific questions) were self-reported by 159 mothers and 123fathers. In addition, physicians made estimations of the child’s healthstatus (Lansky/Karnofsky estimations). Nonparametric tests revealedthat burnout symptoms occurred more often among fathers of childrenwho had undergone transplantation within the last five yr compared tofathers of children with no history of serious disease (34.4% vs. 19.9%).Burnout among mothers and fathers was associated with the child’snumber and severity of health impairments up to five yr after the childunderwent HSCT (Spearman’s rho for mothers 0.26–0.36 and forfathers 0.36–0.61). In conclusion, chronic stress in parents after achild’s HSCT seems to abate eventually. However, parents should bemonitored and offered adequate support when needed. Moreover, thesituation of fathers in the often mother-dominated pediatric settingshould receive more attention in research as well as in the clinic.

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